blog post

  • A lots been going on for me this past month. The main thing is I’m preparing to start going car camping, something I’ve never done before. I have to learn a lot since I’ve also never been camping before (besides in a camper, and that was when I was younger). It’s fun to have something… Read more

  • I re-finished a crochet blanket. I finished it, realized it wasn’t wide enough, so I added width to it. I’m gifting it to a friend, so I wanted it done by Saturday, and I accomplished that. I’ll put a picture of it below. At the beginning of the week, the AC in my room started… Read more

  • 7/7/26

    I started playing Horizon Zero Dawn, a video game set in a post-apocalyptic future where animal-like machines attack and tribes rule the continent. I’m 15 hours in, it takes around 25-40 hours to finish, and I’m really enjoying it so far. Fourth of July came and went. I went to my cousins to swim and… Read more

  • 7/1/26

    My sister and I are going to start working on making a video game. She knows how to use programs like Maya and Unreal Engine, and I know how to write, so we’re combining our skills to make one. I finished a crochet project that I freehanded. It’s a brushbuddy from Witch Hat Atelier, which… Read more

  • 6/23/26

    Since I was in a flare last week, I didn’t do anything with my dad for Father’s Day, we’re doing something this Friday instead. I’m also going out to dinner with a friend on Sunday, which will be nice since I don’t see them that often. I want to start a “Health Logz” page on… Read more

  • 6/17/26

    I have an appointment tomorrow with a new cystic fibrosis doctor. Before this, I was still seeing the children’s one, but since I’m 22 now I have to switch to adult. The appointment starts at 7:30, which is really early, especially considering it’s an hour from my house. I’ve been resting the past two days… Read more

  • 6/2/26

    I’ve been working on a crochet blanket using the moss stitch for the past couple of weeks. It’s the second blanket I’ve made using this stitch, and while it takes a long time, it’s worth the outcome. I ordered three books from ThriftBooks; it’s my first time buying from them. I got ‘Between Two Kingdoms:… Read more

  • 5/29/26

    Flares, Events, and Health Updates I hate when I’m anticipating a flare. I did a lot yesterday, too much, and while it was worth it, I know I’ll be paying for it soon. Sometimes I feel bad right away, but other times it takes a day or two for me to start feeling it (sometimes… Read more

  • 5/22/26

    It’s beautiful outside. I went around my yard, taking pictures of whatever I found pretty, which was mostly flowers. I’m trying to appreciate the little things more, even if they don’t seem that big to other people. Life is different when you’re not constantly bombarded with stimulation, like social interactions or emails at a job;… Read more

  • 5/18/26

    My cardiologist appointment went well. My current plan is to try two antihistamines to hopefully help with some suspected mast cell issues. It was overall a productive appointment, and went better than I’d anticipated. I’ve been having some numbness/fuzziness and poor circulation (cold hands/feet) in my mouth, face, hands, and feet. I called my neurologist’s… Read more