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  • 5/12/26

    I contacted my old POTS doctor and was able to get in with her this Thursday. I wasn’t a huge fan of her, but she is knowledgeable on POTS and their comorbidities, so I figured I’d at least see her once to get myself back to a baseline. I stopped the medication I was taking… Read more

  • 5/2/26

    This week has been semi-eventful. My mom’s birthday was Wednesday, and we went to Painting With a Twist on Thursday to celebrate it. Then Friday, a friend and I went out to lunch and then to Barnes and Noble. I got two books (pictured below) and had a good time. An update on that medication… Read more

  • 4/24/26

    I had a rheumatologist appointment Monday that went well; it’s not like the doctors actually doing much for me, so I’m going to see him in a year. I also had a dentist appointment Tuesday, and yesterday (Thursday) I had an appointment with my PCP (primary care physician). I’ve been having high blood pressure, some… Read more

  • 4/15/26

    I’m tired. I’m not sure if I’m heading into a flare from birthday stuff or if I’ve just overdone it the past two days (or a combination). I’m also dealing with side effects from meds and other medication changes. I’m trying to find a POTS specialist in my area since my primary care doctor doesn’t… Read more

  • 4/13/26

    Yesterday I went to an art museum for my birthday. I took pictures of my favorite pieces (see pics below). I won’t harp on it too much, but I am expecting a flare because of the outing, and I also didn’t feel great while walking around the museum. I had to take lots of electrolytes… Read more

  • 4/6/26

    I’m trying not to think about the new doctor I’m seeing tomorrow. I hate seeing new doctors, hate having to gauge whether they’ll listen to me or not, and hate having to go through my long medical history. To say it’s exhausting is an understatement, and these types of things really take a lot out… Read more