health

  • 9/11/26- Four Updates

    I don’t really know how to start this post. To be honest, I haven’t been in the mood to write, but I do have a decent amount of updates. I think I may try going about this in a list/numbered format today. One: I got glasses! I’ve known I need glasses for a while, and… Read more

  • I tried car camping in my backyard recently, but it didn’t go great; the reason being that my POTS did not like it. When I say that, I mean I was having tachycardia and such while setting up my car and everything. While it was annoying, I was only in my backyard, so I could… Read more

  • 6/23/26

    Since I was in a flare last week, I didn’t do anything with my dad for Father’s Day, we’re doing something this Friday instead. I’m also going out to dinner with a friend on Sunday, which will be nice since I don’t see them that often. I want to start a “Health Logz” page on… Read more

  • 6/17/26

    I have an appointment tomorrow with a new cystic fibrosis doctor. Before this, I was still seeing the children’s one, but since I’m 22 now I have to switch to adult. The appointment starts at 7:30, which is really early, especially considering it’s an hour from my house. I’ve been resting the past two days… Read more

  • 6/2/26

    I’ve been working on a crochet blanket using the moss stitch for the past couple of weeks. It’s the second blanket I’ve made using this stitch, and while it takes a long time, it’s worth the outcome. I ordered three books from ThriftBooks; it’s my first time buying from them. I got ‘Between Two Kingdoms:… Read more

  • 5/29/26

    Flares, Events, and Health Updates I hate when I’m anticipating a flare. I did a lot yesterday, too much, and while it was worth it, I know I’ll be paying for it soon. Sometimes I feel bad right away, but other times it takes a day or two for me to start feeling it (sometimes… Read more

  • 5/22/26

    It’s beautiful outside. I went around my yard, taking pictures of whatever I found pretty, which was mostly flowers. I’m trying to appreciate the little things more, even if they don’t seem that big to other people. Life is different when you’re not constantly bombarded with stimulation, like social interactions or emails at a job;… Read more

  • 5/18/26

    My cardiologist appointment went well. My current plan is to try two antihistamines to hopefully help with some suspected mast cell issues. It was overall a productive appointment, and went better than I’d anticipated. I’ve been having some numbness/fuzziness and poor circulation (cold hands/feet) in my mouth, face, hands, and feet. I called my neurologist’s… Read more

  • 5/12/26

    I contacted my old POTS doctor and was able to get in with her this Thursday. I wasn’t a huge fan of her, but she is knowledgeable on POTS and their comorbidities, so I figured I’d at least see her once to get myself back to a baseline. I stopped the medication I was taking… Read more

  • 5/4/26

    It’s super nice out today, 75 degrees. I sat outside earlier and crocheted, and I was just out there reading one of the memoirs I got from the library. I had therapy this morning, which went good, and took a nap around 1:30 because I didn’t feel great (I still don’t even after the nap).… Read more